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Abstract

Grant Number: 5R44MD000552-03
Project Title: Sickle Cell Personal Medical Information Card
PI Information:NameEmailTitle
PRINGLE, STEVEN

Abstract: DESCRIPTION (provided by applicant): The Emergency Department (ED) treatment of patients with Sickle Cell Disease (SCO) is often provided without reliable information on current medications, recent complications, and recommended protocols. To overcome this limitation, Point Vista Software, in collaboration with the Northern California Comprehensive Sickle Cell Center at Children's Hospital and Research Center Oakland, is developing a Personal Medical Information Card (PMIC), based on a Smart Card standard, to allow patients to easily present both medical information and updated NIH-approved guidelines for pain management and critical care. In previously devised smart card-based systems, the clerical burden of entering data has been almost universally responsible for deployment failure. The PMIC system proposed here features extensive security protocols, a graphical user interface developed in collaboration with ED and specialist consultation, and appropriate access agreements and instructions. Equally important, a middleware component allows the entire card contents to be constructed directly from Hospital Information System databases, without clerical burden or clerical error. In this Phase II application, Point Vista is proposing to complete the development and test the card in a trial of 100 SCD patients. Our aims are to develop the login agent, the personalization system, and the middleware to support a clinical trial of the PMIC. In the trial, ED records will be assessed both before and after use of the PMIC system. Outcome measures will assess the contribution of the PMIC to patient care and satisfaction and the contribution of the PMIC to clinician satisfaction. After successful application to SCD patients, the technology has the potential to improve the care of other complex, chronic conditions. As such, the commercial value exceeds the benefit to the SCD patients who will immediately benefit.

Thesaurus Terms:
automated medical record system, computer human interaction, computer system design /evaluation, information display, patient care planning, personal log /diary, sickle cell anemia
Internet, computer program /software, emergency care, health care quality, health disparity, hospital equipment /supply, information system, interdisciplinary collaboration, microprocessor /microchip, personal computer, primary care physician
clinical research, human subject

Institution: POINT VISTA SOFTWARE, LLC
633 EVERETT ST
EL CERRITO, CA 945303237
Fiscal Year: 2006
Department:
Project Start: 30-SEP-2003
Project End: 28-FEB-2008
ICD: NATIONAL CENTER ON MINORITY HEALTH AND HEALTH DISPARITIES
IRG: ZRG1


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